Achieving Disability For Ehlers Danlos Syndrome

Ehlers-Danlos Syndrome & Disability Benefits

Navigating life with Ehlers-Danlos Syndrome (EDS) presents unique challenges, including chronic pain, joint instability, and a range of other symptoms that can impair daily functioning. For many facing this reality, understanding how to access disability benefits is crucial.

Grundy Disability Group can assist individuals with Ehlers-Danlos Syndrome in securing the benefits they need and deserve, providing guidance through the complex landscape of disability claims.


What Is Ehlers-Danlos Syndrome?

Ehlers-Danlos Syndrome (EDS) is a genetic disorder that impacts the connective tissues in the body. These tissues support the skin, bones, blood vessels, and many other organs and tissues. In people with EDS, these connective tissues are faulty, leading to a range of issues.

Here are some of the key signs of EDS:

  • Joint Hypermobility: Joints that stretch further than normal and can dislocate easily.
  • Fragile Skin: Skin that bruises and stretches more easily than usual.
  • Chronic Joint Pain: Ongoing pain in the joints.
  • Vascular EDS: A type of EDS that is considered life-threatening because it can cause blood vessels to tear.

The symptoms of EDS can vary a lot from person to person but they often make daily activities difficult and can cause a lot of discomfort. For some people, the effects of EDS may be severe enough to make them unable to work.

Disability attorneys and lawyers understand that living with EDS can be tough. They help people gather medical evidence to show how their symptoms prevent them from working and help them apply for disability benefits for Ehlers-Danlos Syndrome. This assistance is crucial for many who face the physical limitations and challenges associated with this group of connective tissue disorders.

Is Ehlers-Danlos Syndrome A Disability That Qualifies For Benefits?

Under the Social Security Administration’s guidelines, Ehlers-Danlos Syndrome can be considered a disability if it limits one’s physical functioning or involves severe complications that prevent normal daily activities.

EDS is not listed as an example in the SSA’s Blue Book of qualifying conditions, however, it could still qualify with the right evidence. It would likely fall under immune system disorders or another category with the right evidence.

Proper medical documentation can demonstrate severe symptoms and complications like chronic joint dislocations, severe osteoarthritis, or significant cardiovascular complications. These symptoms can significantly impact a person’s daily life and ability to work.

How Can You Get Disability For Ehlers-Danlos Syndrome?

Securing disability benefits for Ehlers-Danlos Syndrome involves a few critical steps:

  1. Gather comprehensive medical records that detail your diagnosis, symptoms, treatment plans, and how these impact your daily life. Documentation should include notes from physical exams, test results like genetic testing, and opinions from your healthcare providers.
  2. Prepare a report that explains how EDS affects your ability to perform daily activities and any work-related functions. This includes difficulties with walking, standing, lifting, or other routine tasks.
  3. Submit your application through the Social Security Administration, either online, by phone, or in person. Include all your prepared documents and ensure your application is thorough to avoid delays.
  4. Stay proactive in following up on your application status and be prepared to provide additional information as requested by the SSA.

How Grundy Disability Group Can Help With Your Claim

Grundy Disability Group brings years of experience in handling complex disability claims, including those involving Ehlers-Danlos Syndrome. Our approach includes:

  1. We begin by evaluating your specific circumstances to tailor our advice and strategies to your case.
  2. Our team assists in preparing and organizing all necessary documentation to build a compelling case for your claim.
  3. We represent you in all dealings with the SSA, ensuring that your case is presented clearly and effectively, maximizing your chances of approval.

Common Reasons Why Ehlers-Danlos Syndrome (EDS) Claims May Be Denied for Social Security Disability Benefits

Navigating the process of securing Social Security Disability benefits for Ehlers-Danlos Syndrome can be fraught with challenges, often leading to initial denials. Understanding the common reasons for these denials can better prepare individuals to counteract potential obstacles in their claims. Here are several reasons why an EDS claim might be denied:

  1. The most frequent cause of denial is the lack of adequate medical evidence. Documentation must comprehensively detail the severity of the condition and its impact on daily life.
  2. Records should include a formal diagnosis, treatment plans, and notes from multiple medical visits over a prolonged period. Genetic testing results that confirm the diagnosis can be crucial.
  3. Claims often require input from specialists who understand the complexities of EDS. If the records lack insights from rheumatologists, geneticists, or other relevant specialists, the SSA might not view the case as adequately supported.
  4. If the documentation fails to show that EDS significantly impairs the claimant’s ability to perform basic work-related activities, such as walking, standing, sitting, lifting, or carrying, the claim may be denied.
  5. A detailed functional report demonstrating how EDS affects these activities is essential.
  6. Discrepancies between medical records and the claimant’s reported symptoms or abilities can lead to denial. Consistency in all forms and medical reports is crucial.
  7. If medical records indicate that the claimant has not consistently followed prescribed treatments without a valid reason, the SSA may conclude that the condition might not be as disabling as claimed.
  8. Younger individuals with EDS might face denials more frequently because the SSA assumes they can adjust to less physically demanding jobs, despite their condition. Higher educational levels can also impact decisions, with assumptions that claimants can transition to less physical or sedentary work.
  9. EDS, while chronic, may present periods of lesser severity. If the SSA believes the disabling condition could improve significantly, they may deny the claim.
  10. Simple mistakes like incomplete forms, missed deadlines, or failure to cooperate with the SSA’s requests for additional information can also result in a denial.

What Can We Do If Your Claim Was Denied?

If your initial claim is denied, don’t lose hope. Grundy Disability Group can take several steps to contest the decision:

  • We review your application to identify any areas that could be strengthened or clarified.
  • We guide you through the appeals process, preparing all necessary briefs and paperwork.
  • We represent you at the disability hearing, advocating on your behalf and arguing the merits of your case before a judge.

Schedule Your Case Consultation With Grundy Disability Group

If you or a loved one is struggling with Ehlers-Danlos Syndrome and needs help securing disability benefits, contact Grundy Disability Group today. Our dedicated team is ready to assist you in navigating this challenging process, ensuring you receive the support you need. Schedule your case consultation to discuss your specific needs and how we can help you achieve a successful outcome.

Client Testimonials

What Clients are Saying

Find out how the clients who trusted us feel about our firm.

I cannot say enough
good about Matthew Grundy and
ALL of his staff.

I contacted his office October 2020, because I had and still am, fighting breast cancer. I had numerous surgeries, still doing chemo, finished radiation and still fighting the fight. They took care of everything and that was such a blessing because I was too sick and weak to do it myself. I would absolutely recommend them and I am so grateful that a friend referred them to me. They were always polite and punctual returning my calls and emails. Don’t go it alone, let them take care of it, reserve your strength to fight for your health.”

— D.S. Kansas City

Dear Matt

I want to take a moment to say I appreciate all you do for clients (me) throughout the SSD process. You provided me top-shelf representation, case knowledge and follow up. Thank you!”

— A.S. Leawood, KS

A friend referred
me to Matt Grundy.
He was amazing!

I felt the weight lift off my shoulders. He was caring and efficient and took over the whole process. He handled all correspondence and was my voice in my hearing. I was ecstatic when Matt got my disability approved. I wish I had started with Matt before I ever filed.”

— W.T. Kansas City

After being denied trying to file on my own
I was fortunate to have Grundy Disability Group
recommended to me.

A short survey and a visit then they took control of my case. This was the best decision I’ve ever made. Matt answered all my questions without hesitation and gave me confidence about my case. I’ve already recommended them to others and will do so gladly. Thank you Matt and his team!”

— W.S. Kansas City

I had a great experience
working with this office.

They are thorough, and get the job done with the least amount of stress on the client as possible. I would recommend them to anyone I know who needs help navigating their SSDI claim. I couldn’t have asked for a better experience.”

— W.W. Kansas City

I’m epileptic and you recently
just helped me get disability.

I just wanted to email you guys and say thank you guys so much! I appreciate your hard work and dedication.! you guys have helped me get my income back since I haven’t been able to work. Now I can pay my bills again and get caught up again that is a relief. thank you guys again so much god bless you and all your families.”

— A.D. Kansas City

Thanks again for
your help on all this.

From the first conversation I had with Susan Frank, whose advice set me on a course to lay the groundwork of a successful claim – months before I hired you. I spoke to a couple of other places before I spoke to her and there was no comparison. The difference between my initial contact with Susan VS the others was a personal connection and actual value in the phone call. It was informative, connected and extremely helpful. This built trust and made my decision to choose your organization easy. My ongoing dealings with you only confirmed my choice. Matt is extremely connected with his clients and communicates promptly and thoughtfully.”

— T.C. Kansas City

To the Law Office of Matthew R. Grundy

I, Delisa Cadenhead, would like to extend my appreciation for the dedicated work I received from your firm. Thank you for standing by me and my case. I hope you and your firm have many blessings. Thank you very much!”

— Delisa Cadenhead

Matt, Regina, Nina, and everyone else that helped work on my disability case:

You were ALL an awesome, cohesive, genuine TEAM and I appreciate all your help!”

— Shannon D. Bonner Springs, KS

Free Consultation

Get Experienced Representation

You're invited to schedule an appointment for a free consultation to discuss your claim for benefits.
We have shown thousands of disabled persons how to win their Social Security claims, and look forward to helping you with your case.
One of our social security disability lawyers will meet with you in Kansas City, Missouri to get you started on your case.

    Helpful Information

    Frequently Asked Questions

    When do I apply for Social Security disability?

    Our Social Security disability lawyer in charge of your case will work tirelessly to determine what went wrong. Our Social Security attorneys will then refile your claim, making sure everything is in order. Our Social Security lawyers will not stop until you are successful in claiming the benefits you deserve. Read More

    You have to have been disabled, or expect to be disabled, for at least one year to be eligible. So, if you expect to be out of work for one year or more on account of illness or injury, you should file for Social Security disability benefits. Read More

    To apply for Social Security disability benefits, you will need to complete an application for Social Security Benefits and the Disability Report. You can also print the Disability Report, complete it and return it to your local Social Security office. Read More

    Cases are generally handled on a contingency basis. That means the representative receives a fee only if you win your case. Normally the fee is 25% of your back benefits and must be approved by Social Security. Read More

    You do not have to wait until the workers’ compensation ends, and you should not wait that long. Read More